While it is not possible to cure NF1, much can be done to make sure that you or your child has the best possible outcome.
The multidisciplinary medical team looking after you or your child will be able to address specific medical concerns and routine NF1-related healthcare issues.
Sun protection, such as the use of sunscreen, is also recommended.
Your managing doctor(s) will discuss screening recommendations with you and your child (if needed) in greater detail. The age and onset of screening may depend on the personal and/or family history of NF1. Screening guidelines may change as more information is known.
Hypertension
Bone problems
Neurological or psychiatric conditions and pain
These issues may not be encountered by most individuals with NF1. Screening, management or treatment of these problems are offered on a case-by-case basis and will be discussed in greater detail by your managing doctors.
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