Haemophilia is a bleeding problem due to a lack of normal levels of a clotting factor. Clotting factors are proteins in blood which help to control bleeding. People with haemophilia do not bleed faster than normal, but they can bleed for a longer period of time.
Haemophilia is quite rare and it affects about one in 7,000 males. The most common type of haemophilia is called Haemophilia A. This means the person does not have enough clotting Factor 8 (VIII). A less common type is called Haemopholia B. This person does not have enough clotting Factor 9 (IX).
Bleeding into a joint or muscle causes
Treatment is given for
Treat the bleeds quickly! When you stop the bleeding quickly, your child will have less pain and damage to joints, muscles and organs. Your child will need less amounts of clotting factor to control the bleeding.
Stay physically fit Strong muscles help protect your child from joint problems and spontaneous bleeding (bleeding for no clear reason). Consult your haemophilia doctor or physiotherapist for advice on the appropriate sports and exercises for your child's condition.
Do not take NSAIDs (Non-Steroidal Anti-Inflammatory Agents) NSAIDs affect the function of platelets and can worsen bleeding. Examples of NSAIDs are Brufen and Aspirin. Other drugs can affect clotting too. Always seek your doctor's advice on whether the medicines are safe.
See a haemophilia doctor or nurse regularly The Haematologist or Haematology Resource Nurse will give help and advice about managing your child's health.
Avoid injections into muscles A muscle injection can cause painful bleeding. However, vaccinations are important and safe for a person with haemophilia, and can be given with appropriate precautions. Most other medications should be taken orally or injected into a vein rather than into a muscle. Speak to the Haematologist or Haematology Resource Nurse for advice.
Take care of your child's teeth To prevent problems, follow your dentist's instructions and advice. Dental injections and surgery can cause major bleeding. Clotting factor should be given prior to dental procedures which can cause bleeding.
Carry medical identification with information about your health Carry the World Federation of Haemophilia medical card or Medic Awas card with you at all times so that information about your child's condition and treatment plan is always available.
Learn basic first aid. Quick first aid helps manage bleeding Remember that very small cuts, scratches, and bruises are usually not dangerous. They may not require treatment with clotting factor. First aid is often sufficient.
*R.I.C.E refers toRest --> Ice -->Compression --> Elevation
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